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Be Positive

It’s no wonder I was given this B+ blood type, not only as a moniker of how I hope I am deep down, but as a benchmark of how I’d like to be, especially when meeting challenges.

It’s Friday the 13th, and for those who are superstitious, it’s a day when bad things happen. OR you could look at it differently as I am, as a day when IF something bad is going to happen, it might as well come out of hiding today and show itself and let ME decide if it is as bad as IT thinks it is. Taking the veil off scary situations and staring them in the face eye to eye gives you the power vs relinquishing it, gives you control and that optimism that you know is still there, that you know still shines brightly inside you.

These last few weeks I’ve been scared of a lot. Scared my health is going down the tubes, scared I won’t continue to be my usual bubbly energetic self, scared I’ll get chemo and feel and look awful. Today, this Friday the 13th, my doctor’s office called me and I learned that I will need chemo after all to eliminate any potentially lingering not benigns, which they say are gone, but so we can ensure they stay that way.

I’d like to announce today that I’m done wallowing in all this, so please don’t you. I’m beginning a period I’d like to call my drama drought. I’m rolling up my sleeves and getting to work. All the worry and whining will give way to smiling and winning.  And it’s Christmas time for crying out loud! I’ve got so much to do and good things on my plate.

I imagine I might feel kind of lousy after I begin this treatment (dates tbd after I meet with my oncologist one week from today), and while my beautiful hair might need to go dormant during this winter, like a lovely zoysia lawn does, I am still here. I’m as me as I ever was, and I am going to move through all of this happy and healthy, and with boatloads of “Be Positive” bright red blood coursing through me.

Just my update for today. I like thoroughness and this Friday the 13th, while a smidge disappointing, did its part, lived up to its reputation, delivering a full-on badass Friday the 13th. But just so we’re clear, I’m the bigger badass, so there.

I’ll close with Happy Friday, because it still is and I still am.

xoxoxo

 

 

Uncategorized

C like cat.

As I made my appt with my medical oncologist last week, the scheduler on the phone gave me directions to Emory’s Winship Cancer Center, my close by radiation site. I couldn’t hear her well as she said the name of the place, so she reminded me it’s “C,” like cat. How nice that she shares my not benign way of talking! And how interesting that all of a sudden, I can say things like my medical oncologist, my radiation oncologist, when just a few short weeks ago I didn’t have any of these people in my world. But I don’t believe it feels quite the same as if you could say my pool guy, or my tailor, or some similar luxury person one might afford and for affectation sake feel inclined to refer to. I’m not showing off, really, but I can say I have my team, which of course includes me, and I’m confident we will all be taking excellent care of me.

So many refer to this path or journey I’m on, but I need to look at it differently. Imagine your fridge is packed to the gills and one day you discover there’s a moldy lemon way in back. You remove the lemon of course and notice it has released and left some juice and pulp and mold behind, clouding up your glass shelves. Now everything in the fridge must come out and you wipe down the entire fridge with hot soapy water, removing the shelves, the drawers, the butter dish and the door compartments. Next you assess all your fridge contents and decide what to keep and what to toss. Finally, you get a strong bleach cleaner and do a final wipe of the entire fridge, inside and out before putting back the contents. My little not benign mass was that lemon (of course way smaller) and I’m now getting ready for the bleach cleaner treatment.

If I were to call this my path or my journey, which we all know it is, it would feel like mine and mine alone. Referring to it that way, for me, makes me feel separate and I’ll admit a tad lonely, because it sounds more like I’m moving down some road, leaving all familiarity and friends who have stayed behind on land to continue doing their normal things, without some path switching up their plans. I picture Tom Hanks in the movie Cast Away taking his beloved Wilson along on his homemade boat as he set out on the big blue sea watching familiar land in the distance get smaller and smaller. I don’t want to be on that boat leaving what I know. Nor do I think I have to.

Instead this experience from Oct to date for me is rather a timeline. You remember the history timelines from grade school? Where there is a horizontal line and big round bullets popping up along the way, and vertical lines extending up and down from them with notable events and their dates? I’m on this timeline, having moved through a slew of significant dates already. I’ve got more ahead, but at some point, you get to the end of the timeline and no, I’m not talking about your own demise, but the end of the events which have made up this moment in your history. Later, you can step back and look at all you moved through and remember all the waiting between bullet points, wishing the next one would hurry and happen already, and how all the wishing in the world didn’t change the rate at which you reached the next bullet point.

I’m in that waiting mode now. Waiting on the Oncotype test results from the tissue they removed during my lumpectomy which will indicate how likely this strain of not benigns is to return. There is some numerical risk value this result will bring and I understand scoring 26 or higher means a greater risk for which they bring out the major artillery. I should hear next week and this value will chart the course of my treatment, tell me whether on top of radiation I also will need chemo. Not even sure the order I’d get them in either, if in fact I do need both. I’ve thrown a ridiculous amount of anxiety at this possibility and worried myself into tears, an unlimited stream that easily comes out of nowhere and which I’ve let run its long and winding course each time, leaving my eyes puffy and watery.

I’ve decided to hold on to a few positives, however: my dreams over the years have been quite telling. As horrible as this may sound, the night before my mom died I dreamed that she died. And what do you know, the next day she did. I had dreamed this dream once before earlier in her emphysema illness, but this second one I guess took. Certainly not my doing, but I found it interesting that it popped up in my dreams just the night before. All this said, the other night I dreamed I got my results and I only needed radiation, and the strain of radiation recommended would be super easy and manageable, and before you know it, I’d be cruising toward the end of this timeline, ready to daily pop that estrogen blocker pill I’m to go on for five years. I woke up in a hopeful mood, with less puffy eyes, and my outlook was energetic and largely normal. As if that weren’t enough to boost me, the next day I found a penny on the ground, heads up, which if you’re even mildly superstitious you might know is good luck.

My results will be my results. I will do what the doctors recommend, because while medicine fascinates me, biology is the only class I’ve ever failed, and so I’m not going to even begin to know any better or second guess these doctors. That poor biology grade was pure laziness on my part as I refused to memorize all the parts and pieces of these amazing bodies of ours, refused to put in the enormous hours required. Whatever course of treatment I am prescribed, I will keep moving through my timeline, and continue to move forward, checking all these things off my list. Of course, I would love this treatment to be easy and not make me feel or look bad, but in the end, I’ve got that gleaming refrigerator waiting for me at the finish line, and c’mon, who doesn’t love a cleaned out fridge?

 

loss

Seabirds, Sadness & Sunshine

gannet on beach
Walking on the beach recently, I saw a beautiful, unusually large seabird. He wasn’t flying overhead in search of dinner or migrating with his flock. He wasn’t flying at all actually. He was on the sand, sitting, feet tucked under him, staring out at the ocean like the other beachgoers scattered along the water’s edge. We approached slowly and saw he was nervous, barely flapping his wings, and we could tell he knew he wasn’t going anywhere. The tide was coming in and he just stared as if lost in thought. I have to assume seabirds think.

We worried about him but after all the wing flapping gave him space and walked further down the beach to lunch. A few hours later, we returned to find the scene mostly unchanged except the tide moving in and our bird now drifting out. I went to him again, talking quietly, and after a few attempts he let me stroke his white feathered back. The tide kept on with its work and I rolled up my pant legs to begin my own. His long beak meant no harm as he turned his head to look back, feeling my hands cupping underneath him. The tide continued and so did I with two more rounds of gently carrying him further up the beach to dry sand, trying to outpace the tide. We knew we couldn’t just leave him to drown, and thankfully call after call finally turned up a rescue who said they were on their way.

We sat with him for an interminable hour wondering when help would come, scanning the beach for someone resembling this bird’s hero. Eventually she walked toward us, an older woman with long dark grey streaked hair and tanned outstretched hands, loving and worn, ready to help. She told us our bird was a gannet and thought the strong northeast winds had tired him out and kept him from migrating. Before she took him, I talked to him again, stroking his back, endless layers of stacked white feathers, soft as rose petals. He turned to look at me as if he knew, knew I loved him, knew I was rooting for him, knew I had his back.

 

The rescue assured me they’d update us on his progress and texted the next day to say they tube fed him right away and he had enjoyed a fish before bed. Our boy, however, didn’t make it. She told me I did the right thing and could tell right away he was weak. She said they usually give a struggle and a loud “aakk, aakk, aakk” and try to bite. Our bird had only sat quietly looking ahead.

Structures and bodies weaken and give out and we are left behind remembering how things were and imagining how they will be. My friend’s adored pup died recently, and I see my own rapidly aging before me. A family friend is divorcing, and I remember his wedding and the bridesmaid’s dress I wore. A dear girlfriend has suffered unimaginable loss with her husband’s abrupt passing. Even Paris once again is hurting, this time it’s her centuries old Notre Dame who is forever changed, but who will rise again. As I write this, millions of dollars have already been raised to rebuild her.

footprints

With every event, every loss, every tear, you can see love emerging and growing. As if there’s a rheostat and the dial has unlimited clockwise turns, unlimited brightness if you should want or need it. Nearby friends and those far away appear and gather and support each other, people connect as they lean in to help, and we remind each other that we are here for one another, here where we’ve been all along.

It’s not just the bird. When things happen, as they do in droves sometimes, I can’t turn off my impulse to dive in headfirst into the vast sadness, to rescue, repair or reverse whatever has gone so terribly wrong, and I’m disheartened and still surprised to find how little control I actually have. There is no pretty bow you can tie around pain or loss. You go through it and, if you’re fortunate to be surrounded by love and support, you come out the other side stronger. Nor is there a recipe for supporting someone in pain. Showing up and listening are probably the first two ingredients.

There is a time to be born, and a time to die. And in the pain, through the tears there is sunshine. Sometimes the shadows are thick and the shade feels cold, but the cycle keeps on, the sun shining, the rain falling. I think back to our bird, our sweet gannet, and remember there was something we could do. We could sit with him, reassure him, protect and hold him, feed him what he needs, make the smartest choices we could and release him. I’d like to think he’s flying overhead high up in heaven reunited with his group. I think they all are.

The point is I guess, the reason we are here together, is… love each other, love each other hard. Sit still in the moment, stroke your dog’s head, rub your partner’s shoulders, enjoy some good food in your belly before bed. We can’t know how much time there is, but we can look around and do something now. Instead of adding insult to injury, maybe the sadness that seeps in after a loss is a reminder of the love? A reminder you are still here. Wherever you are right now, with the people around you and the people you remember, you have made and still are making a difference. To love and be loved: that’s a whole lot.

gannet 2