I’m in the thick of it. No, not suddenly showered with the thick tresses I’ve wanted my whole life, but rather I’m in the thick of chemo. The twitching eyes, the mouth threatening to develop a sore if I don’t swish with mouthwash thrice daily, and then there’s the hair, which now resembles a Charlie Brown Christmas tree. With each step around my house, its needles fall, and it seems the tree’s trunk has weakened and bent over.
Just this morning I submitted my third patient support ticket to the Dignicap folks inquring what I can expect as I’ve been diligently wearing their cold cap during treatments. Certain they’re sick of me, sick of all the questions, like a child incessantly asking, “Are we there yet?” But I need answers and their experience to settle me down. Seems I’ve lost at least 50% of my hair at this point, with most of the shedding occurring last weekend. Even though their literature warns this will happen, with only half of my treatments behind me, if the shedding continues at this clip, I can’t imagine I’ll have a head of hair left by my final chemo blast February 28. It’s uniform at least and has thinned out symmetrically, though I find myself stepping lightly so as not to loosen any more strands. Shhh, don’t wake the hair! Crazy how obsessed I’ve become. My doctor thinks since I still have hair at this point that it will remain, and despite his words, I’m not completely sure.
Shhh, don’t wake the hair!
Why does our hair have to be such a thing? I was born bald and by all accounts a plenty cute and happy baby. Yet as my hair grew in as full sheets of cornsilk and as I grew, like many girls, I don’t think I appreciated what I had. My hair was whisper thin, though to its credit a bright natural blond, and over the years I grew to love it, especially since I didn’t need to color it, but for the two times I did foils just for fun. All my life, my hair’s sleek softness, shine and spirit has wrapped my head and shoulders in health and bounce and in some ways, I suppose I took that for granted, assumed it would always be there, a pretty veil covering the nape of my neck.
I don’t think I appreciated what I had
These days, I pull my hands around my hair and realize the scant covering I now have, an oily few strands deep extending over my scalp which plays peek-a-boo when a little wind or head tilt reveal the sparsity. I know this is temporary and I know these drugs are doing what they’re supposed to do. They attack fast dividing cells, which are both the malignant ones and the ones affecting your hair, and digestion, too. It all makes such sense on an intellectual level, but I feel self-conscious even going to the grocery store at this point, though thankful that the weather is cold and I can wear a hat indoors. I bought a second bucket hat, camel corduroy, another option for ducking in and out of stores, hopefully unnoticed.
I feel a tad guilty about this vanity realizing I am lucky I’m even alive since my jarring discovery just three months ago. Still, I can’t wait until these drugs are done doing their thing and my hair and body can return to doing theirs, return to how they were, but that much stronger and better. Good hair days sure can carry you, help out a shabby wardrobe, dulling makeup, a bad mood. But good health, like a tall towering tree trunk, has the power to lift you like nothing else.
On my way out I saw a glorious sunrise, which filled me up. I had to buy ice and the locked box outside wouldn’t open with the key the gas station attendant gave me. Only the 20 pound bags were accessible and I wanted 10 which already my cooler wouldn’t hold. The attendant grudgingly came outside to help and me and she also couldn’t open it. Hoping she’d take pity on a running late girl and let me head out with the 20-pound bag having only paid for the 10, but no such luck. We had to go back inside and recharge my AmEx after I waited in line behind other customers. This extra 10-15 minutes cost me being on time and left me a tad frazzled. Got there with all my gear – my big Ikea bag carrying my weighted blanket (a godsend!), another soft blanket, my washed cotton bonnet which goes under the cold cap, the spray bottle to make sure head is soaked before starting cold cap, magazines, my lunch, steroids for morning and afternoon doses, socks for feet for icing, cooler for ice, containers to put my feet and hands in while icing and a hoodie and more socks. Got settled into a chair with my friend Elsie by my side and we began round 2.
Nurse struggled with IV for a long time telling me she’s trying to weave it in. Elsie looked over with concern seeing the nurse struggle and watching me whince. I reminded her to please just not look. I’m not going to as I never do, and I can’t handle the concerned looks as they bring worry to her face and to my mind. So we kept up some semblance of a conversation while the nurse kept poking my wrist from different angles and it didn’t seem like she was making any headway. All I could picture is she’s a novice crewel embroiderer (not cruel as she was super sweet) and is trying to do the satin stitch but instead working on some combination of it and a chain stitch, a frenetic criss-crossing of holes and angles, needle going in and popping back out at a strange angle. Had I looked I knew it would appear my wrist lost its battle with a box grater. I can say that it most assuredly hurt like hell. She suggested she get someone else to try to which I enthusiastically nodded yes, and another lady came by and switched to my right arm. This one took thankfully without too much embroidery gymnastics involved.
Re my hair, it did major shedding these last few days, as the cold cap folks warned, but it’s still there. Doctor thinks if I was going to lose it all it would be noticeable by now, so I think the cap might be working. They warn that you will have a good deal of shedding but don’t be alarmed as that’s normal around first and second treatments. It should taper off as I go on. These steroids have left with me English cheeks, that lovely flush you see in old fashioned paintings, but mine’s more intense and spread out.
Up today eating toast and drinking Gatorade. Pets all around and my dog has established a strange little nap routine, tucking her head under her mat. I’m feeling much much better. Graduated to a sweet potato and a little chicken. Last steroid this afternoon will be it until my next treatment so looking forward to no more big energy bursts and English cheeks, and settling into whatever this next round will bring. So much better to at least have experience of the first round and even this second. Anything goes with these crazy drugs and I’m good and ready. Despite a rough day yesterday, I am optimistic and thankful. It feels so good to have this behind me. Going through this you actually look forward to the next treatments. You want time to speed up and I’ve been filling mine with loads of things — good foods, a little TV, and some of my favorites have been loads of walks and talks. A handful of girlfriends have stayed in good touch and we’ve begun doing long walks. I started getting into that 10,000 steps thing using my health app on my iPhone. The other day I did a dog walk and two separate walks and talks with friends and that got me up to 6.4 miles! So fun and efficient to catch up with dear girl friends and travel all over town, in neighborhoods, downtown by stores, wherever. The conversation and our legs take us loads of places. Far better than sitting over a glass of wine like I used to do, though I do want to resume those, albeit sparingly.
I’m receiving this custom infusion by two very Special Agents C & D, initials of the c
I should know in the next three weeks if I will experience typical shedding which is expected even using the Dignicap, or full on hair loss. I’ve already got a call into a Piedmont hair expert and based on the recent photo of me that I sent her, I’m a candidate for her synthetic wig titled “California Dreamin.” All I can picture is Carol Channing for some reason!
Someone asked me if chemo is loud. Maybe she was picturing wails from patients as harsh chemicals surge through them, or loud machines chugging to push sloggy liquids through the lines. It’s hard to describe, but it’s none of that. You’re not worried sitting there. Or I wasn’t. And no one looks sickly or anything. There is a quiet kindness in the air and the room is pleasant and airy with big windows offering views of Atlanta outside. Only discomfort was icing my fingers and toes but I took breaks. Otherwise you’re just sitting in these super comfy chairs that recline, nicer than any nail salon, with an IV in your arm. Joe brought his laptop and we went over some house ideas – talked about fireplace details. We brought lunch from home and ate it there. It was almost kind of fun, in a day date sort of way. When the place cleared out, they even let him hop in a comfy chair to stretch out.