breast cancer, connection, Encouragement, Health, hope, Uncategorized

Two down, looking up.

It’s here! November 21. Finally, and forever in my head as a threshold I get to cross: the day I had that lumpectomy surgery. I had already put this day behind me when I was wheeled into that operating room two years ago, and now, I am grateful and looking forward.

Here I am. I’ve hit two years and then there’ll be three, five and that mother of all finish lines, ten, where they’ll hand me a “cured” ribbon. You don’t really get a ribbon, I don’t think, but, actually better, you get to drop off of your oncologist’s schedule. If there is a ribbon, I picture it a bright sunny yellow one vs pink and screaming all kinds of hope and happy. The pink doesn’t do that for me. Blood can be pink, Pepto Bismol is pink, calamine lotion is pink, and at the center of the storm, nipples, are pink, unless you radiate them 21 times, and then they turn closer to the color of your skin. Yellow, however, is hope, the sun, happy lemonade on a summer day, my hair keeping my head warm, the color of urine when it’s telling you to hydrate more, the circle of French knots in the center of a daisy. I vote yellow.

For this award, there are people to thank:

General gratitude goes out to people who show kindness. The nurses have it going on. The one standing close to my feet while I was getting biopsied initially, who took it upon herself to lovingly stroke my ankles and drape a warm towel over them. The others, who during office visits continue to hear me and my endless concerns, and help me get to the answers I need. The others during chemo who, like labor and delivery nurses, treat you like a queen when you didn’t think you needed or deserved it, and then like a regular person when you most do. They listen to your wired incessant jokes, as the steroids you’ve had to take for days surge through your veins, and they really laugh, the belly kind when you know you’ve struck a chord with someone. The ones who, after chemo and radiation is through, nudge you to ring that bell, and gather others around to cheer you on, noisemakers in hand, beaming ’til their sweet faces must hurt, and then sending you on your way. 

Hair stylists have it, too. When you go in with a crazy combination of long strung out strands and new little sprouts appearing on your scalp, and you leave with a legitimate cut, you know there are angels out there. You return every few months to lessen the gulf between long hair and short and, two years in, it’s just a head of hair now, like everyone else.

The friends you either don’t know well or else don’t see often, but who know what happened. They see me now and they always seem happy that they can. I worry, sometimes, if my brand is too bright, if this little health emergency I had to tend to might forever define me. Sometimes when I see these people, I wonder if there’s a little curiosity going on, like I’ve had myself with the few people I knew who had “it.” Maybe it’s a little hesitation to stand too close to that lady who saw things. Did she see a white light, you know getting so near to the other side? What were they like, those bags of poison, four of which ran through her veins?  Did she lose hair everywhere, I mean, even down there? And what has become of that poor boob, now that the show is over and the scaffolding has been removed? Is this girl now cloaked in a hopeful gratitude blanket skipping along pink meadows through her journey, or does that why did this happen to me bitterness ever come calling? To which I can answer: I was of course joking about a white light. The IV hurt like any IV does going in, but as for the poison itself, you wouldn’t know that’s what you’re getting. Days later, though, it definitely brought skin and taste and stomach annoyances as it worked its magic. Hair left all the different parts of my body in waves and returned in a similar staggered fashion, but now it’s all back and glorious. The boob is just dandy, thank you very much, and all things considered, seems quite normal and happy for its future still here with me. Gratitude is brighter and I literally must stop and smell every rose I see.  And I do. The small stuff, however, can definitely still grate on my nerves, but any bitter taste in my mouth, literally from chemo and figuratively from all this existential stuff I’ve been wading through, has given way to staying on the hunt for improvements in every area of my life. 

To those individuals, friends of mine, not naming names, but you know who you are, you did things, good things, that I won’t forget. 

-You were with me when I got the call, and only had love – not worry – on your face when I later told you.

-You sent emails telling me I was on your mind.

-You bought cards and mailed them to me, sweet words lifting me up, cards I’ll always keep. 

-You hugged me tight, that yummy long embrace that came out of nowhere, but I so needed, and which still lingers.

-You thoughtfully read my blog and commented, cheered me on, sometimes even remembering important milestones I was about to meet. 

-You helped me get curious about meditation even though, like my only occasional church visits, I’m a sometimes meditator. Still, you let me break down and cry and sent me home with some wonderful books, each with its own accessible, healing approach.

-You cooked for me, all of it handmade with love: chicken with broccoli, kale stew, broiled shrimp and roasted vegetables, vegetable and kale soup.

– You were going through your own similar slice of hell at the same time, yet you were open to meeting me and sharing your story with me over coffee, emails and visits, and we got to root each other on.

-You sent flowers and sweet notes.

-You called.

-You sent love in a blanket with hopeful words embellished in its fabric.

-You sent socks with treads on them that I still wear, ginger lozenges for chemo, special shampoos and other helpful goodies you lovingly researched to carry me.

-You joined me on some of those 21 days, walking to radiation, the six miles there and back. What fun that was noticing things, catching up, laughing too.

-You went to a long day of chemo with me where we hunkered down and where you helped ice my fingers and toes, so chemo’s poison wouldn’t bring on neuropathy. We caught up, killed the time, and we lunched, and I learned that this is what friends do. 

-You checked in.

-You showed up. 

-You loved me as if nothing had changed.

To my family: you continue to dilute my worries and reset me in the direction of everything’s going to be okay. Two of you flew down to be with me for my last chemo. How special that was! Another one of you sat with me and watched TV as I lolled in bed wrung out from that one beast of a nausea episode. You walked with me to radiation that gorgeous early spring day. You all continue supporting and encouraging me as I’ve changed things up and largely lessened my alcohol intake, dropped beef off my menu, and continue to try and make healthier choices. For those of you who pray, you prayed. All of you loved me and listened and cared, and you still do. I know this has been a long haul, exhausting for you, too, but you went through this with me, and we came out the other side together, now with two years under our belts. Now, it’s that much farther behind all of us, thank god, and thank 💛you💛 from the bottom of my heart. 

Uncategorized

25% there!

Last Friday, I received the first of four chemo treatments I’ll get over the next two months. It’s strange to willingly drive to a place where you know they will inject you with poison that will drip through you for several hours, and that you’ll repeat this drill every three weeks over the course of your treatments. Yet it is this very poison that will help you. Sometimes we all need a complete detox, even if it’s a tox that’s doing the de-toxing.

scrubbing_bubbles_logoI’m receiving this custom infusion by two very Special Agents C & D, initials of the chemical agents I’m receiving, Cyclophosphamide & Docetaxel, helpers, like Dr. Seuss’ little Cats A, B, C and so on. These agents are cleaning me through and through — picture Dow’s scrubbing bubbles, an infusion of Mr. Clean’s strength cut with Mrs. Meyers’ love.

I’ve been outfitted with a Dignicap, for which we must pay extra, which is a recently patented fitted head cap that fills up with cold water and then ice, down to 3 degrees Celsius, designed to protect your hair follicles, nearly freezing them from chemo’s harsh effects. Joe and I both agreed the name could use some improvement, because surely we all have dignity, with or without our hair? Still, I’ve had 56 years with mine, so I want it to stay if it will. It’s just hair I remind my vain self, yet I will continue to protect mine down to the last strand.

carol channingI should know in the next three weeks if I will experience typical shedding which is expected or else full on hair loss. I’ve got a call into my hospital’s cancer boutique and based on the recent photo of me I sent her, I’m a candidate for their “California Dreamin.” All I can picture is Carol Channing for some reason!

Added to the scalp chill during treatment is the ice water I’m soaking my fingers and toes in. Chemo can give you neuropathy, that tingling hands and feet are asleep sensation, and sometimes it hangs around long after treatments are over. One way to counter these effects as with freezing your hair follicles, is to ice your fingers and toes during treatment. One of my two “medicines” creates this neuropathy, so the icing only occurs during that single hour after which I can hunker down under a blanket and warm up for the second hour of chemical drip.

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This was my report from the infusion room yesterday: Got my cool cap on today and did the finger and toe icing (to prevent neuropathy). Then got under a warm blanket for another few hours with cooling cap.  Feeling good. Thx for all the positive vibes. Got home around 4:30 and went on a half hour walk with Lucie. Joe and I are heading out on another walk. Glad to get it behind me. The cold cap seemed to work because when they took the cap off, my scalp literally had ice on it! So maybe it’ll work? Keeping fingers in ice 75 min was harder than the toes, bc I wore surgical gloves vs thin socks on my feet. Took some 30-45 sec breaks, though. Had a tiny bit of neuropothy in my left foot for like a minute a bit ago, so maybe that is typical, especially so soon after treatment. All in all a good day. 25% behind me!

And the second update the day after: I’m feeling fine esp given that two chemical agents dripped through me yesterday 🙂 They put you on steroids for three days to cut down on water retention and help an anti-nausea medicine work better. Feel quite energized today which is to be expected. Going to make pasta sauce and clean up around the house. Yesterday walked 1.5 hrs which felt good. Going to keep that up daily. Walked a brisk walk for an hour today. Super energized with the steroids. I’m supposed to begin to feel the effects tomorrow or Monday which last 3-5 days. I asked if there were big spikes with side effects that I could expect – like would I out-of-the-blue projectile vomit while grocery shopping? – they laughed and said it’s more like a flu-like malaise. But added everyone is different. With anti-nausea meds at the ready I don’t expect to have that. Then apparently I should feel back to normal until my next treatment on January 17, and I repeat this cycle through four treatments which end Feb 28. The hand and feet icing for 75 min was “challenging” but I took a few breaks. Hoping for zero neuropathy and today have had none. Also these drugs can make nail beds darken and sometimes I read that nails just peel off! Icing also keeps this at bay so I’ll definitely do it each time.

IMG_6382Someone asked me if chemo is loud. Maybe she was picturing wails from patients as harsh chemicals surge through them, or loud machines chugging to push sloggy liquids through the lines. It’s hard to describe, but it’s none of that. You’re not worried sitting there. Or I wasn’t. And no one looks sickly or anything. There is a quiet kindness in the air and the room is pleasant and airy with big windows offering views of Atlanta outside. Only discomfort was icing my fingers and toes but I took breaks. Otherwise you’re just sitting in these super comfy chairs that recline, nicer than any nail salon, with an IV in your arm. Joe brought his laptop and we went over some house ideas – talked about fireplace details. We brought lunch from home and ate it there. It was almost kind of fun, in a day date sort of way. When the place cleared out, they even let him hop in a comfy chair to stretch out.

It’s New Year’s Eve and I’m wondering if any effects will show up. So far there have been just a few: I could feel the start of a canker sore in my mouth but I’ve swished with baking soda and salt every day and thankfully nothing. These chemicals leave your digestive tract a bit sluggish, and mine has been no exception. My left eye lid has developed a sporadic twitch, most likely my body’s way of saying, wtf? I’m guessing my white blood cell counts are starting to drop as I’m told they will. Yet I’m not finding dry,  itchy skin, bleeding gums and nausea, or the boatloads of other gruesome things the Internet promised. Goals for 2020: stop researching side effects on the Internet!

I’m thankful I’m still here and rolling into the new year with my Special Agents C and D, who will be with me through late February, after which they will take on new assignments. I am grateful and humbled and healthy, and I can’t tell you how much I appreciate all the love and support.