breast cancer, connection, Food, Friends, hope

Hearts Wide Open

Maybe it’s this pandemic or the end of my cancer treatment, but I’ve been thinking a lot about how to improve things — my outlook, my sense of hope, tapping into more curiosity and creativity and connection, and not wasting any more of this precious time we get. When I started this blog a few years ago, I titled it Hindsight because I realized it captured so much of what I’ve been doing, thinking about the past and noticing patterns so I can learn more about myself. I hope to collect the best parts of the past and reuse and refashion them for these times, because those bits are the ones I want and need more of.

I’ve been thinking about not wasting any more of this precious time we get.

There are plenty of traditions I’d like to resurrect. For instance, I’ve been wanting to go on picnics again, remember those? Growing up, we had a red checkered tablecloth and four of us would grab the corners and lay it down flat, smoothing out the wrinkles. Then the real fun began, unpacking the basket full of delicious things our mom had packed. Usually we were by a creek or a lake, so along with great food, there was a beautiful backdrop.

Other than packing a meal to enjoy on a car trip, or dining alfresco somewhere, the last real picnic I had, the kind where you make and pack up all the food and sit outside on a blanket, was a surprise one my husband pulled off over two decades ago. It wasn’t fancy or somewhere out-of-town. Instead it was in Ansley’s Winn Park here in Atlanta, and he’d cleaned out our fridge and created a lovely spread, with salami and baguette and artichoke hearts and some sweets and nice beers too. I think he even brought a blanket to sit on. He’d stolen a few hours in the middle of his workday at Colony Square, and the two of us lying under midtown’s twinkling towers in my favorite park was perfect. I don’t know if it was the surprise, the delicious meal resulting in a cleaned-out fridge, the loving company or the magical backdrop that blew me away, but am thinking what touched me most, is how thoughtful he was to plan and prepare this.

Remember visiting with people, before the Internet and answering machines and DVRs, to those times when we spent an enormous amount of time outside? Times when you would walk to a neighbor’s and knock on their door unannounced and while away an afternoon just being together? My recent visit with my friend, Karen, while planned in advance, felt much like one of these. She greeted me at her door with one of those hugs you never forget: big open arms that pull you in tight and hold you there. I haven’t had one of those hugs in maybe ever, nor had I seen her since my breast cancer diagnosis and treatment. Her hug communicated so much – such happiness and relief to see me smiling and healthy. We drove to Stone Mountain and walked the five-mile loop, and then returned to her house where she gave me a wonderful tour . She pointed out memorabilia and told stories about special items she and her family had collected. Afterward, we had tea on her deck and with lovely Lake Kenilworth in the distance, visited some more.

One of those hugs you never forget: big open arms that pull you in tight and hold you there

Recently my sister and niece came down from Chicago, their visit timed with my last chemo treatment. After the excitement of picking them up from the airport and settling them in, I remember us hanging around my kitchen table nibbling on snacks and catching up. In my usual self-conscious, self-deprecating style, I was poking fun at my various bald spots on my scalp, out of my control from the chemo, the ones where the cold cap didn’t fit well, a visible sign I was now different from them, I was the cancer patient. They assured me I looked fine, and after I joked some more, my sister looked up with her kind loving eyes and said, “Susie, we love who you are no matter what is going on with your hair. You’re still you and we love you like we always have.” In that moment, I saw the truth. All my jokes aside, these two wonderful women before me in my kitchen knew me and loved me all the more. My eyes well up just retelling this.

You’re still you and we love you like we always have.

I’ve always said food is love and I still believe it is. It’s my way of showing I care, that I want to nourish you and delight you with something delicious, and it’s others’ way too. This simple act of preparing food for someone is so intimate and layered and loving, and whether complicated or simple, it’s a recipe that keeps on giving. Over these last few months, I’ve had a half dozen or so friends bring me delicious things — soups, stews, seafood and chicken, all healthy and homemade with love. I’ve frozen extra servings and reheated them weeks later tasting and receiving the love all over again.

I’m finding these times are further connecting us as we isolate. With much of the background noise of our busy lives gone, it seems our conversations, Zoom cocktail hours and texts are stripped down to their essence: how are we each doing and how can we connect, how can we help one other? I’ve got a few friends who thoughtfully tell me when they’re headed to the store and can pick up an item or two I need. And these days, I surprise myself by letting them. In turn, I’m already thinking of what I can do for them, maybe something special to eat or helping to solve a problem they’re struggling with. Or maybe it’s just staying in good touch.

How can we connect, how can we help one other?

The other night our power went out, unfortunately timed precisely during our return from a particularly large grocery run. As I knelt on my front porch, flashlight strategically propped and Clorox spray in hand, wiping down the contents from endless plastic bags, a rush of gratitude spilled over me at this sweet assembly line: I wiped down the items, one son took them from me at the front door and brought them to the kitchen where, by candlelight, the other son and my husband organized them and planned how they’d refrigerate and freeze it all with 1-2 limited refrigerator door opens. These hundreds of dollar’s worth of groceries were our livelihood, our next week to ten days of preparations and conversations over nourishing meals and yes, our share of Haagen-Dazs and chips, fried chicken tenders and other empty calories, too. The candles and oil lanterns I’d rounded up lit our hall, dining room and kitchen, so for the next hour until the power came back on we mostly hung around those areas, all of us hovering near all the food we’d scored and safely stowed.

Today the lights are on, the sun is shining and it’s a new month. It’s also the start of my new and final cancer treatment, the daily ten-year pill I started today to keep this long-gone tumor forever in my rearview mirror. This medicine is known equally for its effectiveness and side-effects. When and if the joint pain or night sweats or doldrums hit, I hope I’ll remind myself that these are signs that it’s working. I hope these annoyances will actually lessen or else become something I absorb and get used to, and that they begin to seem like the helpers you’re supposed to look for in times of need.

So, here’s to more picnics and visits and helpers, and to loving each other with hearts wide open. xoxox

 

 

 

 

 

 

 

 

 

breast cancer, Grace, Health, hope

Be Positive

It’s no wonder I was given this B+ blood type, not only as a moniker of how I hope I am deep down, but as a benchmark of how I’d like to be, especially when meeting challenges.

It’s Friday the 13th, and for those who are superstitious, it’s a day when bad things happen. OR you could look at it differently as I am, as a day when IF something bad is going to happen, it might as well come out of hiding today and show itself and let ME decide if it is as bad as IT thinks it is. Taking the veil off scary situations and staring them in the face eye to eye gives you the power vs relinquishing it, gives you control and that optimism that you know is still there, that you know still shines brightly inside you.

These last few weeks I’ve been scared of a lot. Scared my health is going down the tubes, scared I won’t continue to be my usual bubbly energetic self, scared I’ll get chemo and feel and look awful. Today, this Friday the 13th, my doctor’s office called me and I learned that I will need chemo after all to eliminate any potentially lingering not benigns, which they say are gone, but so we can ensure they stay that way.

I’d like to announce today that I’m done wallowing in all this, so please don’t you. I’m beginning a period I’d like to call my drama drought. I’m rolling up my sleeves and getting to work. All the worry and whining will give way to smiling and winning.  And it’s Christmas time for crying out loud! I’ve got so much to do and good things on my plate.

I imagine I might feel kind of lousy after I begin this treatment (dates tbd after I meet with my oncologist one week from today), and while my beautiful hair might need to go dormant during this winter, like a lovely zoysia lawn does, I am still here. I’m as me as I ever was, and I am going to move through all of this happy and healthy, and with boatloads of “Be Positive” bright red blood coursing through me.

Just my update for today. I like thoroughness and this Friday the 13th, while a smidge disappointing, did its part, lived up to its reputation, delivering a full-on badass Friday the 13th. But just so we’re clear, I’m the bigger badass, so there.

I’ll close with Happy Friday, because it still is and I still am.

xoxoxo

 

 

breast cancer, Health, hope

C like cat.

As I made my appt with my medical oncologist last week, the scheduler on the phone gave me directions to Emory’s Winship Cancer Center, my close by radiation site. I couldn’t hear her well as she said the name of the place, so she reminded me it’s “C,” like cat. How nice that she shares my not benign way of talking! And how interesting that all of a sudden, I can say things like my medical oncologist, my radiation oncologist, when just a few short weeks ago I didn’t have any of these people in my world. But I don’t believe it feels quite the same as if you could say my pool guy, or my tailor, or some similar luxury person one might afford and for affectation sake feel inclined to refer to. I’m not showing off, really, but I can say I have my team, which of course includes me, and I’m confident we will all be taking excellent care of me.

So many refer to this path or journey I’m on, but I need to look at it differently. Imagine your fridge is packed to the gills and one day you discover there’s a moldy lemon way in back. You remove the lemon of course and notice it has released and left some juice and pulp and mold behind, clouding up your glass shelves. Now everything in the fridge must come out and you wipe down the entire fridge with hot soapy water, removing the shelves, the drawers, the butter dish and the door compartments. Next you assess all your fridge contents and decide what to keep and what to toss. Finally, you get a strong bleach cleaner and do a final wipe of the entire fridge, inside and out before putting back the contents. My little not benign mass was that lemon (of course way smaller) and I’m now getting ready for the bleach cleaner treatment.

If I were to call this my path or my journey, which we all know it is, it would feel like mine and mine alone. Referring to it that way, for me, makes me feel separate and I’ll admit a tad lonely, because it sounds more like I’m moving down some road, leaving all familiarity and friends who have stayed behind on land to continue doing their normal things, without some path switching up their plans. I picture Tom Hanks in the movie Cast Away taking his beloved Wilson along on his homemade boat as he set out on the big blue sea watching familiar land in the distance get smaller and smaller. I don’t want to be on that boat leaving what I know. Nor do I think I have to.

Instead this experience from Oct to date for me is rather a timeline. You remember the history timelines from grade school? Where there is a horizontal line and big round bullets popping up along the way, and vertical lines extending up and down from them with notable events and their dates? I’m on this timeline, having moved through a slew of significant dates already. I’ve got more ahead, but at some point, you get to the end of the timeline and no, I’m not talking about your own demise, but the end of the events which have made up this moment in your history. Later, you can step back and look at all you moved through and remember all the waiting between bullet points, wishing the next one would hurry and happen already, and how all the wishing in the world didn’t change the rate at which you reached the next bullet point.

I’m in that waiting mode now. Waiting on the Oncotype test results from the tissue they removed during my lumpectomy which will indicate how likely this strain of not benigns is to return. There is some numerical risk value this result will bring and I understand scoring 26 or higher means a greater risk for which they bring out the major artillery. I should hear next week and this value will chart the course of my treatment, tell me whether on top of radiation I also will need chemo. Not even sure the order I’d get them in either, if in fact I do need both. I’ve thrown a ridiculous amount of anxiety at this possibility and worried myself into tears, an unlimited stream that easily comes out of nowhere and which I’ve let run its long and winding course each time, leaving my eyes puffy and watery.

I’ve decided to hold on to a few positives, however: my dreams over the years have been quite telling. As horrible as this may sound, the night before my mom died I dreamed that she died. And what do you know, the next day she did. I had dreamed this dream once before earlier in her emphysema illness, but this second one I guess took. Certainly not my doing, but I found it interesting that it popped up in my dreams just the night before. All this said, the other night I dreamed I got my results and I only needed radiation, and the strain of radiation recommended would be super easy and manageable, and before you know it, I’d be cruising toward the end of this timeline, ready to daily pop that estrogen blocker pill I’m to go on for five years. I woke up in a hopeful mood, with less puffy eyes, and my outlook was energetic and largely normal. As if that weren’t enough to boost me, the next day I found a penny on the ground, heads up, which if you’re even mildly superstitious you might know is good luck.

My results will be my results. I will do what the doctors recommend, because while medicine fascinates me, biology is the only class I’ve ever failed, and so I’m not going to even begin to know any better or second guess these doctors. That poor biology grade was pure laziness on my part as I refused to memorize all the parts and pieces of these amazing bodies of ours, refused to put in the enormous hours required. Whatever course of treatment I am prescribed, I will keep moving through my timeline, and continue to move forward, checking all these things off my list. Of course, I would love this treatment to be easy and not make me feel or look bad, but in the end, I’ve got that gleaming refrigerator waiting for me at the finish line, and c’mon, who doesn’t love a cleaned out fridge?

 

breast cancer, Encouragement, Health, hope, Love

Kill ’em with kindness.

Last month I found my hands cupping my breasts, first the right and then the left. Hold on now, just so we’re clear, this is not one of those stories. This one’s different, but stay with me. They were unusually smooth, nothing like a few years ago, pre-menopause, when I used to do these self-exams, parsing through the mealy tissue with clockwise two finger circles. I have what’s termed “dense breasts” which I can only describe as the consistency of pea gravel you’d run through a Cuisinart, so turning over any potential bad stones always seemed next to impossible, so I stopped, but kept up my annual mammograms.

Over the years I’ve been religious with all my health checkups, occasionally even calling doctors early to remind them it’s time for me to come in. This year was no different, with a gyn annual visit in February that included a breast exam, and a mammogram in July. For that mammogram, I took my usual lucky seat next to the aquarium in the breast health center waiting room, and once called in, got it done. They called me back days later needing a “second look.” All you can think with a call back is holy shit. The days drag when you’re waiting for the MyChart “all clear” and the letter that follows which you’ll of course save in a file forever. Eventually I was cleared and declared “normal” and looked forward to another year’s stay of execution.

Fast forward to October when I was lying on my bed and for some reason decided to feel both sides thoroughly, almost marveling at their teardrop symmetry and softness, delicately balanced above my rib cage. All that pea gravel now gone after menopause, this texture was smooth. Except, wait? Is that something on my left side? Hmmm. More rotations, more checking the other side. Yep, this is a little something, and I’ll be getting that checked, yet felt fine about it since the July all clear.

I called my doctor the next day and got in several days later. As I sat in the examining room in my paper Flying Nun gown, not nearly as adorable and carefree as Sally Field, I couldn’t help but wonder, wtf? My doctor felt it too, and looked a little puzzled, but reassured me it’s probably nothing, recalling July’s normal results.

Next on the agenda was another mammogram, this time 3-D, followed by an ultrasound that same day. As I checked in, the woman in reception, excited about her bouquet of pink pens for the taking, reminded me that I can keep the pen. I was reluctant, but she extended the pen toward me anyway and smiled, waiting it out. My mind went to the Seinfeld episode when Jack insists to Jerry, “Take the pen!!” I took the pen and tossed it in my purse hoping it’s hot pink malignant ink wouldn’t leak everywhere.

I set off to change in their dressing room, passing the normal waiting area and on to a room deeper in the facility, with nicer snacks and cushier chairs, certainly not intending to, but definitely amping up my anxiety. I refused to enjoy an apple juice or the Milano cookies set out in this waiting area because I was a regular in the first room, and despite my assignment to this one, I wasn’t going to drink their Kool-Aid.

The radiologist viewing my ultrasound asked me if I’d experienced trauma to my left breast, or did I have diabetes? My research later revealed that both conditions can resemble a malignancy, and befuddled, I nodded no. Though I did fall in New York skating in Bryant Park a few years back and cowered off the ice to heal only to go back on in a half hour and do it again. Skaters don’t just keep going when a fifty something woman falls; instead there’s this unspoken “old lady down” alert and they rush over and help you up and off the rink so the skating can continue without the distraction. And then there was last year when I was walking my dog on a perfectly fine fall afternoon and tripped on an enormous acorn in my path. Down I went and off went the skin on my knees replaced with sticky bloody ovals on each knee cap, like a kid’s, but wrinkly.

The radiologist said her share of hmmm-s, and I’m concerned-s, and a biopsy was scheduled in a few days. The biopsy radiologist was comforting, imagine Faith Hill in a lab coat, with a velvety voice to match. She walked me through all the steps, numbing your breast, placing a hollow needle inside and pulling out a sample of the tissue for testing. She said I’d be hearing a clicking sound which reminded me of an ear piercing gun. After it was done, instead of sporting gold ball studs in each ear you’re sent home with a Steri-Strip on the incision.

It looks like I’m allergic to Steri-Strips, or maybe it was the Lydocaine, but the next day I developed a rash covering the entire breast and even down below my ribs. Nothing itchy or painful, but just weird and slightly worrisome. After an interminable day or three (at this point, honestly, it’s all a blur), I got the call. You can guess the news from your gyn’s voice because I’ll bet they all start out with “We got the results back on your biopsy and….”. I already know that front end of the sentence because isn’t that the reason she’s calling? Yet while somewhat extraneous, it affords a few seconds for you to gauge the tone of the news and predict what’s coming next. With each word, the tone became increasingly I’m sorry to have to tell you this.

After learning the news of what I’m dubbing my not benign situation while standing in a friend’s driveway, I returned home and a few hours later Faith Hill (remember, the pretty radiologist?) called me not realizing my gyn had already told me. We talked at length and her velvety calmness was the perfect salve. I asked her advice on loads of things and she said I should get a bilateral MRI (scanning both sides) and I asked if they’d automatically order it and she said yes, but after I met my surgeon. The next morning first thing, I was on the phone trying to schedule the MRI, and they said usually you meet with the surgeon first and then you schedule the MRI, but they thought they could do it this way instead. I was meeting my  surgeon the next week and certainly wasn’t going to wait all those days to see her only to wait more for the MRI, so I hounded them a bit, ok a lot, to go ahead and schedule it in advance so the doctor would have everything in hand when we met. I mentioned my radiologist suggested it, and my Faith Hill get the MRI card worked.  The not benigns were surely procreating inside me and needed to stop their shenanigans immediately.

A day or so later on a Friday afternoon I got a phone call from the hospital’s “patient navigator” who asked if she could help. I was in denial that I was on this pink papered path and I certainly didn’t need a navigator, which only further acknowledged the road before me. But she got me talking about my confusion with several MyChart biopsy results, about things like estrogen and progesterone receptors, and HER2, and labeling my not benign situation as invasive ductal. She explained there are some silver linings here. I am ER 100% positive which means that the pill I’ll end up having to take for five or ten years is uniquely suited to my situation. This little bugger feeds on estrogen and only estrogen, so we can starve its sorry ass (my words, not hers). The HER2 thing, which I don’t exactly understand yet, but which I learned is negative, she said is also good news. As we kept talking, I liked her voice more and more. I hadn’t told many people and certainly hadn’t broken down. But I did here. For probably another half hour I sobbed and talked and sobbed some more and she listened and sent love and courage over the phone. And that was everything. That same evening I had plans to go see a play with friends, but after this outburst couldn’t imagine myself ready to leave in 20 minutes, but I made it happen. I loved the play and the evening, but holding my secret inside was hard and unsettling.

The MRI was bizarre. You lie face down on a table that has two big cutouts which line up with your breasts which hang down as if someone below on a stool would be milking you. You are given a rubber oval thing to squeeze if you need anything (thank you, I’ll take a Shake Shake double cheeseburger, stat) as you are rolled into this machine, with earphones on, because it’s loud. They said it would sound like a construction site, but to me it sounded like a phone off the hook which nobody had bothered to put back on. You remember when phones came with wall plugs and curly cords? The MRI attendant seemed proud that Piedmont could now offer me Sirius for my listening pleasure. I choose classical piano which paired nicely with phone off the hook.

Fast forward to I don’t know how many days later, and my husband and I were at a breast center in front of my surgeon. (Btw, Georgia Tech’s McCamish Pavillion could be a fine place to house a breast center – do a drive by, look at its shape and nipple on top and see if you don’t agree.) I had heard of her and her solid reputation, and she struck me as beautiful in a pre-plastic surgery Janet Jackson in a lab coat sort of way. Her calmness worked well against my whatever you want to call it. She told me I was Stage 1 (or could be 2), and 1 cm in size, though the MRI shows it could be double that. Lots of potentially positive news followed by little doubts about whether it was as simple as it sounded. I pictured phone cords from all those off the hook phones tangled up in my breast, making finding this evil bugger hiding in a sea of breast density next to impossible. Still, teary eyed, I asked, “Is this eradicateable?” Surely that’s not a word, but after using it, I wasn’t going to admit to my degree in English, and instead just whimpered softly repeating the question. She gave me a bit of a “well, duh” look, followed by a “yes,” which calmed me down. She said my lymph nodes in both the ultrasound and the MRI looked small and unremarkable, which is what you want, and after surgery we’d determine my course for treatment. She added if my pathology report indicates these not benigns have a low risk for returning, I’ll only have to get radiation. High risk and they add to that the big guns, the cannons, the chemo. After all that, they put you on a pill for five or ten years, depending on pathology results. Piedmont is a badass.

With this diagnosis you get things. As if Elizabeth Warren herself designed this curriculum, there is a plan for everything. There is a nutritionist you can see, thanks to a grant, and I got in immediately. For now, and maybe indefinitely, I’m gonna be a clean eater, and for now, a non-drinker. All the beige colors have left my plate and it’s bold peppers, carrots, kale and fish for me. A little chicken and some nuts too, but no dairy. Almond and oat milk are vying for space in my fridge and that 2% cow’s milk is shoved in back. I’m determined to feed this troublemaker everything it hates, everything anti-inflammatory.  I’m certain I’ll have a slice of pizza or bowl of real (non chickpea) pasta now and then because, after all, food is one of life’s greatest pleasures. But I am eating well and it all tastes good. Before I went for a run the other day, while putting on my jog bra, I said to these fellas, the not benigns, “Buckle up! We’re going for a ride!” As I pounded the pavement, I pictured them shaking their heads asking wtf?, pissed off and running out of steam, as I filled my healthy lungs with air and pressed on. I’m loading up with all kinds of good ammo. I’m Will Ferrell, the elf, throwing snowballs at this unwelcome mass. Here! Take this! Splat goes a red pepper. Can’t swim in all that almond milk? Too bad, so sad!  Thanks to another grant, there is a counselor to see, giving me ten free sessions, which I’m scheduling weekly. I’ve already been to two and cried through the first and after the second, she said I seem much better. It’s helping. Thanks to another grant, there is genetic testing too, and they’ve drawn two vials of my blood to test some 75 genes. So now I wait for that news. Knowledge will be power.

It’s been a mixed bag (no pun intended) of good and bad, these last three and a half weeks.

THE BAD: I worried every day to get to this day, this lumpectomy. I had to make umpteen appointments and be poked and prodded for biopsies, inserting clips in my breast to guide the surgeon, and then more fun with the IV at surgery and of course, the scalpel. And then I had to worry some more. I had to start telling people, because how can you not?, which made me scared to see their faces often scrunched with concern, as if they saw my future and now felt sorry for me. I had to imagine a potentially sunburnt breast from radiation and wonder would it be permanent, or a bald head from chemo, and imagine what kind of hair would grow back. And what will this medicine do to me other than block estrogen from getting to this breast, the chosen snack of the not benigns. I worried my body has become a game of Whac-A-Mole, stamp out the pests in the breast, only to discover them popping up somewhere else. I worried about worrying my family, my children in particular.

THE GOOD: I caught this myself, it’s early and it’s small. It’s “eradicatable,” and it’s clear someone is watching over me, and for that, I am beyond grateful. My diet is squeaky clean, I am going to move more, and my body will be stronger for having gone through this. This is a wakeup call. A call for more calm and less worry, and I already feel it washing over my cells. I may have been opened up today in surgery, but I am forever opened to breathing in all the good I’m finding and exhaling it over my friends and family, and over strangers too. After I finished rattling off my many questions in the recovery room to my nurse who had remained with me well past what is normal, I got dressed and was about to draw the curtain to leave. I heard a voice through the adjacent curtain say, “I’m glad you asked all those questions. They helped me too. I’m over here next to you.” I said “hi” and opened my curtain to see who was next door. It was the lady who had been on the elevator with me this morning, also heading to pre-op, and I remembered our husbands next to us silently ruminating on what was ahead for their wives. She was lovely and about to be admitted to a room as she’d had a double mastectomy, saying goodbye to both breasts which I can only assume must have been overrun with not benigns. I took her hand and squeezed it, and told her she would do great. She smiled and her eyes sent me the same good wishes. My exit wheelchair was waiting, but I found it hard to leave her with our palpable connection, instantly filled with love and understanding. I leaned in and cupped my hand around her cheek and reminded her again that all will be ok. She will do well as will I, and that moment will surely stay with us both.

I will hear from pathology in a week or so and know more about additional treatment, but for now, the not benigns have left the building, I’ve got my family by my side and friends who are in touch. I couldn’t ask for more. But actually there is one thing I need: Ladies, feel yourselves up like clockwork every month. Learn how they feel, even if they’re pea gravel, so if they change you will know. Also, if you’re considered dense or even if you’re not, insist on a 3-D mammogram, even if your doctor whines that insurance might not cover it. Learn the cost and just do it, charge it if you have to. I didn’t know I needed to request this kind and I’m certain if I had, this would have been caught even earlier when it was even smaller. I’m lucky in so many ways to have good insurance, a strong body and the boundless perseverance that I do.

And lastly, be kind to yourself. Really kind. Because the not benigns hate that. And more importantly, because you, my dear, are worth it.

Postscript: I just learned my lymph nodes are completely clear and the margins around the mass they took are clean. All signs are that I’ll only need radiation but another test due back in two weeks will confirm. Suffice it to say, I am over the moon and thankful beyond measure.

 

connection, hope, loss, Uncategorized

9/11

IMG_4356The day is done. I woke up early this morning and went outside and saw the start of a murky sunrise, a smeared light-polluted attempt at dawn. Bats circled overhead and a nearby train whistle sounded, as a few jets criss-crossed the sky. It’s September 11th  again, a day studded with sorrow and remembrances, what ifs, and what nows, a day so many shared but now wished hadn’t come at all.

Eighteen years ago and four months pregnant with my second son, I had a busy career and on this particular morning, a meeting with an important TBS creative director. The Techwood Drive office lobby was bustling as I stood waiting, staring up at multiple TV monitors. One news clip showed tall towers in Chicago – Hancock and Sears – with a breaking news ticker scrolling along the bottom. Nervous enough about this meeting I’d worked months to get, what on earth was happening in my sister’s city? With no time to learn the relevance of the story on various steel towers’ breaking points under the duress of heat, I was called in and began my spiel presenting our portfolio of logos and brochures, annual reports and point of sale. The TV was on in his office, like everywhere in the building, and I noticed him pulled into the screen as I was, both of us realizing something enormous was unfolding. There was a knock on his door and a female colleague said people were asking if they should go home. He motioned yes but said he’d be getting with her in just a minute. Horrified and now with the sound turned up, we looked at each other unable to speak, and I started to pack up when he directed me to continue. I tried for a moment, but it felt terribly wrong, clamoring for business here, now a ridiculous idea with the relentless evil that was surrounding us, taking over.

A day studded with sorrow and remembrances, what ifs, and what nows.

Petrified driving home, radio on with accounts of planes crashing and towers falling, I was concerned more still was ahead. Atlanta of course would be next on this random hit list, and I worried my route home on Dekalb Avenue was a mine field. What kind of monster was this new world that my innocent baby would soon join? No streets felt safe, but somehow, I got myself home to my toddler and husband, quickly getting inside, shutting the door behind me. The next day as if on autopilot, I drove to Sak’s to find a bathrobe, and left with something beautiful, a soft charcoal grey with a scalloped shawl collar. How bizarre and inappropriate to be shopping the day after, but I must have needed this soft wrap to envelop my baby and me, a cocoon to be safe inside. It would be years before I could part with this safety blanket, and only then when it began to noticeably fray did I finally.

Everyone remembers where they were that day as clearly if it were last week, yet I know my story isn’t unique. Our own memories combine with the reel of news broadcasts and over the years they weave a changing mix of sadness and strength and hope we carry forward. If our thoughts of this day fill us with fear and sadness, can you imagine what it’s like for the families of the thousands lost? It must be an unfathomable deeply private and personal layer to wrestle with, on a day that is forever public, the mourning of that morning we together share.

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Son #1, in New York

My older son, at the time not even two, now lives in New York. I imagine the makeshift memorials, the candles, the music and memories, and wonder if he notices, his head full of school work and subway schedules and college sophomore stuff. The younger son I carried that day is himself headed to college in a year, and for them both, 9/11 is something they didn’t feel but rather grew up knowing about, from us, their parents, and even learned a little in school in APUSH class, studying the United States’ response to 9/11.

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Son #2, senior proof

 

 

When we visited the 9/11 Memorial Museum years ago, I worried about how this sensitive topic would be treated and hoped there wouldn’t be any hint of commercial flavor to this ticketed experience. When we arrived, we immediately felt the striking architecture, bold yet sensitive, and found the way finding minimal and helpful. If you could somehow gather every burnt, broken and twisted artifact left behind to tell the story of this unprecedented tragedy, this museum had done just that. Every detail, display, recorded voice, everything down to the varied lighting installed on different floors created a serene silent scene, and carefully, respectfully led you through that long dark day. Our tour docent spoke in a measured voice and presented a vivid account of this monstrous attack on US soil. Afterward, I thanked her for providing such detail that made it almost seem as if she herself had been there. She paused a moment, and then softly replied, “I was.” Tears rushed into my eyes and knowingly, she put her arm around me, comforting me, the New York tourist and she, the one who’d made it out of hell. I leaned into her for a moment, full on crying now, and then left to go outside in the sun.

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Edgar Woody, pictured with a bourbon (and his dry humor)

My own September 11 started ten years earlier in 1991, the day my father died, so this day holds something additional. This year, I’m realizing, marks the halfway point. I was 28 then and now at 56, I’ve lived as many years without him as I have with. It doesn’t intensify the loss or anything, but interesting for me to realize nonetheless.

If there’s a silver lining, it’s this: you’re here today, so keep going, keep building, keep learning and loving. Stay in touch with people and make plans. There’s lots still to do.

I leave you with a timeless poem published in 1844 and sounds from the memorial bell tower erected a year ago in Shanksville, PA.

Peace and love.

 

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The Day Is Done

The day is done, and the darkness
Falls from the wings of Night,
As a feather is wafted downward
From an eagle in his flight.
I see the lights of the village
Gleam through the rain and the mist,
And a feeling of sadness comes o’er me
That my soul cannot resist:
A feeling of sadness and longing,
That is not akin to pain,
And resembles sorrow only
As the mist resembles the rain.
Come, read to me some poem,
Some simple and heartfelt lay
That shall soothe this restless feeling,
And banish the thoughts of day.
Not from the grand old masters,
Not from the bards sublime,
Whose distant footsteps echo
Through the corridors of Time.
For, like strains of martial music,
Their mighty thoughts suggest
Life’s endless toil and endeavour;
And to-night I long for rest.
Read from some humbler poet,
Whose songs gushed from his heart,
As showers from the clouds of summer,
Or tears from the eyelids start:
Who, through long days of labour,
And nights devoid of ease,
Still heard in his soul the music
Of wonderful melodies.
Such songs have power to quiet
The restless pulse of care,
And come like the benediction
That follows after prayer.
Then read from the treasured volume
The poem of thy choice,
And lend to the rhyme of the poet
The beauty of thy voice.
And the night shall be filled with music,
And the cares, that infest the day,
Shall fold their tents like the Arabs,
And as silently steal away.

 -Henry Wadsworth Longfellow

https://www.youtube.com/watch?v=q8zVVmetepE

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